https://albinismalliance.org/en/about-gaa/
Our History
In January 2020 an exploratory meeting which aimed at discussing the idea of creating a formal global alliance for albinism was held. Unanimous Vote by the 27 Regional and Special Delegates to create a Global Albinism Alliance for albinism was held on 26 January. The vote is a first step to promote solidarity among albinism groups around the world. The 27 regional and special delegates to this meeting elected seven people to conduct a pilot program (Pilot) that would lead to the creation of the Global Albinism Alliance (GAA).
A technical team of four people was to function as a board. Three people were elected to the Secretariat. The Secretariat was to serve as the staff. Ikponwosa Ero, the UN Independent Expert on the Enjoyment of Human Rights by Persons with Albinism at the time, was designated the technical advisor to the technical team and secretariat. The Technical Team and Secretariat decided early in the Pilot to act together as an operational board. Ikponwosa Ero advised the Pilot Team throughout the Pilot and the assessment of the Pilot. Fifteen “regional contact points” were identified after the Paris meeting. These regional contact point positions served as a communication link between albinism groups for each region and the Pilot Team. The regional contact points played a key role in promoting a worldwide survey organized by the Pilot Team in June-July 2020.
Our Vision
A world where persons with albinism enjoy all of their human rights.
Accomplishments
A small mostly volunteer staff has carried out the work of the Pilot in 2020 and 2021. Major accomplishments
include:
- Co-organized 2020 IAAD online celebration
- Conducted 2021 IAAD online celebration
- Conducted worldwide survey
- Published report on worldwide survey
- Published an executive summary of the worldwide survey report
- Secured seed money to cover direct operating costs
- Secured pledge for funding the first-year cost for a full-time executive director
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